Clip Day! - Week of Apr. 8th

"Life is like an eclipse. You cannot live in someone's shadow for too long." ~Shasvini

Advice from a Solar Eclipse:  See the total picture. Be moved by beauty. Live in the moment. Celebrate nature's cycles. Don't be afraid of the dark. Be naturally phenomenal. Lighten up! 

The April 8, 2024 total solar eclipse is the last of its kind to cross the United States until 2044, giving millions of Americans a once-in-a-generation celestial show. The eclipse's path of totality grazed Michigan as it passed through central Indiana and northern Ohio.  Chris and Jane were both at home for the event and Cam was still on the bus at the moment it really darkened.  However, upon exiting the school bus, he was quickly outfitted with eclipse glasses so he could look up at the sun.

Something that will live in our memory banks is a video received from our cousin in Philly.  We wished her a "Happy Eclipse Day" via video and told her how much we missed them.  She returned the message, also using video and while holding up two hair clips wished us all a "Happy Clips Day!"

Cam and his parents seemed a bit more tired this week getting back into the swing of things following their vacation. Our rejuvenation arrived in the form of a planned event.  Renew Mobility is a favorite non-profit and Jane is a member of the Board of Directors.  

Saturday was the annual scheduled Wheel Run for Everyone.  This was the 28th year for the 5k to benefit Renew Mobility (formerly Alternatives in Motion). The challenge is to come out and walk, roll, jog, or wheel - all the money raised supports vital mobility equipment program. The Doctorate in Physical Therapy students at GVSU for the past 28 years have been raising money to support the vital mission to enhance independence through access to mobility equipment. The Wheel Run Together 5K was in-person at the beautiful Allendale Campus. Registration was at 8am, and the race started at 9am.

Since Cameron is a Youth Ambassador for Renew Mobility, he was one of the individuals designated to be a bell ringer to commence the race!  We didn't quite dress warmly enough, assuming the conditions at our home would mimic those at Grand Valley.  The sun was shining, but the wind was whipping which made for a morning chill to the air.  When the race began, we were all happy to be moving along.  GVSU's campus has wide pathways and the 5K route is very scenic.  Volunteers pointed out the directions along the way and sidewalk chalk messages were all positive and encouraging. 

It was fun to see so many people we knew!  The Nolan family, Ms. Cris and Mary Jo, Dr. Lisa and Coach Tom from Mary Free Bed were the standouts. As we neared the finish line, Mary Jo snapped some pics for us and you could hear cheers for every person who made it to the end.  Donuts, bagels and waters were available and there was a raffle drawing.  We were back home by lunchtime. Ms. Kaylee hung out with Cam that evening while Chris and Jane went to dinner and a movie.

Sunday was the warmest day of the week and the sunshine shone brightly all day.  Cameron and his dad worked on setting up the lawnmower.  Chris proceeded to conduct his first official mow of the season.  We all soaked up the vitamin D inching closer to our beautiful Michigan summer.

Camology Quotes:

Chris has been diligently working on his Master's degree. Cam has taken it upon himself to be certain that his dad tackles and finishes homework. One evening, Cam told Chris that he could stop doing something to go back and complete his work.  Chris told him that his son comes first, second and third. His son happily replied:

"Oh, that makes my heart so happy, Dad!"

We Love Philly - Week of Apr. 1st

"I'd like to see Paris before I die...Philadelphia will do." ~W.C. Fields 

“Falling in love with Philadelphia is like celebrating Valentine's Day every day.” ~Anthony T. Hincks

Monday morning, we welcomed raindrops in downtown Philly from our hotel window.  As we overlooked Broad Street, we dined on the second floor enjoying a buffet breakfast.  We relaxed in our room most of the day after all of the activity we enjoyed over the weekend.  

Cam was looking forward to using the hotel pool since we had specifically chosen the Doubletree for its pool lift.  At Cameron's request, we even spoke with someone prior to our stay to ensure it was in working order.  However, when we all ventured to the 5th floor the first night we were there, we found the lift was not functioning.  We kept checking in almost daily and were told the battery was charging or that they would check.  Although we were all disappointed, team Weatherford rallied.  The rain had subsided by late afternoon and we decided to venture out, without any specific plans, to find a restaurant for dinner.  After passing a few places that were not accessible for Cam's powerchair, we found Fado Irish Pub on Locust Street.  The restaurant was inviting and the food was delicious.

Tuesday marked our last full day in Philadelphia.  Our extended family wanted to ensure that we ended on a high note.  We met JJ and Katie at the Adventure Aquarium, just a short drive from Philadelphia in Camden, New Jersey.  It's located right on the Delaware River with over 15,000 aquatic animals.  Cam liked seeing the sharks up close and the huge tortoise.  The tanks were enormous and the last time Cameron had been to an aquarium, he was only 4 years old.  It was a good activity for a rainy day.

After stopping in at our hotel, we met the family back at Katie and Tyler's house for hang out time and dinner.  Our little cousins greeted Cam enthusiastically upon entrance.  Avery presented her older cousin with a flower crown she made at her daycare school.  She was very pleased when it was modeled.  

We shared a delicious meal of meatloaf, homemade mashed potatoes, veggies and a local favorite ice cream, Van Leeuwen, for dessert.  We chatted away through the evening and the time went by too quickly. 

The younger cousins see Cam as the "cool" older kid. They also made certain that Cameron was safely in the van before we left.  Saying goodbye wasn't nearly as difficult knowing we will see these cousins in just a few months at the summer cottage.
Wednesday morning, we packed up our belongings and checked out.  We were encouraged to see that the Doubletree hotel credited 2 nights on our account for the issues with the pool lift.  We were on the road before 11am.

As we made our way back to Youngstown, Ohio, we talked about all of the new experiences we had.  We drove through the cool tunnels in Pennsylvania once again.  We arrived at the Ohio hotel prior to dinner time.  We settled in and took the elevator ride to the first floor where we enjoyed a very delicious dinner at the Bistro.  Cam ordered fish and chips, Chris had a ribeye steak and Jane devoured her salmon.  Thursday morning, we began our journey homeward.  We drove through rain, sleet and a little snow.  It was so good to pull into our driveway before 4pm.

Cam enjoyed his last day of spring break on Friday.  Ms. Amanda arrived after lunch to hang out with her buddy while Chris and Jane tried to catch up on work. Fortunately for Cameron, Ms. Amanda took him to visit her dog, Otis.  And wow, was he happy to see Cam!

Our weekend was spent unpacking and restocking our kitchen.  While we were away, the cabinets in the kitchen, laundry room and two bathrooms were all sanded, primed and painted. Our fam is definitely looking forward to the finish line for our home improvement projects!

Camology Quotes:

Jane kept calling and checking in about the pool lift at the Philly hotel. At one point, the following conversation ensued.

"Mom, it's not worth it.  It's ok not to bug them anymore."

Cam, we tell you to advocate for yourself all of the time. Now, let us advocate for our family.

"You're right, Mom.  I want it to work for the next people if it can't work for us!"

Spring Break Road Trip - Week of Mar. 25th

"It's not the destination, it's the journey." ~Ralph Waldo Emerson  

"People don't take trips, trips take people." ~John Steinbeck

We told Cam that any spring break trip would be his choice.  Over the summer, his cousins requested a visit to Philadelphia and New Jersey.  Cameron chose to head east for his sophomore spring vacation. Wednesday was the last day of school for Cam's week and the last day of work for his parents' week too. After Cameron finished tutoring with Ms. Ann, we all made our way over to JT's restaurant for the limited time cod dinner.  

Thursday morning, we removed the few remaining items from the cupboards in the kitchen.  Cam supervised checking and re-checking the packing list for our trip.  By 11am, we were finally on our way!  Our first day destination was Youngstown, Ohio.  It would take us 5.5 hours to drive there.  Chris rigged up Cam's iPad for easy viewing and maneuvering during the van ride.  We arrived at our hotel close to 5p.  Room service was ordered and we were all pretty tired.  The food was tasty so we decided to order one breakfast and have it delivered.  It was enough for 3 people!  

We were back on the highway by 10am.  Friday's final destination was Philadelphia.  Our trip was long but the scenery from Ohio to Pennsylvania was so interesting.  The sunny drive took us through 4 tunnels.  The service plazas were the coolest, according to Cam, since you could easily complete everything you needed in one stop.  The traffic became heavier as we made our way into downtown Philly.  We pulled into the Doubletree hotel right before 5pm.  The check-in process took some time.  Our spacious room was on the 26th floor, which was also the very top of the building.  Our view was spectacular.  Cousin Avery was very sad we couldn't visit that evening since she had dressed up for Cam, but was happy when we sent a short video.

Saturday morning, after a hotel breakfast, we ventured out to meet cousin Libby in downtown Philadelphia to see some sights.  We were pleasantly surprised that the sidewalks weren't crowded and Cam was able to navigate easily.  Our first stop was the Liberty Bell and Independence Hall. The Liberty Bell, previously called the State House Bell or Old State House Bell, is an iconic symbol of American independence located in Philadelphia. Originally placed in the steeple of Pennsylvania State House, now known as Independence Hall, the Liberty Bell today is located across the street from Independence Hall.  The line to see the bell inside was quite long, so we opted for an up-close look through the window.  

Our next stop with Libby was the "Rocky" statue located in front of the Philadelphia Museum of Art.  An elaborate monument of George Washington from the Revolutionary War along with allegorical figures was located in front.  Cam liked hearing about the monument's history and we were all thankful for the mild, sunny weather.  The 72 steps leading up to the Museum of Art are known as the iconic "Rocky" steps.  Libby and Chris ran up the steps first and then Jane and Chris quickly ascended and descended.  We were on a bit of a time schedule.  

Next, we were slated to meet up with our extended family: cousins JJ & Jeffrey, Katie and Tyler and their daughters Avery and Olivia.  Our lunchtime destination was the Philadelphia Zoo where we would start off with a picnic feast right through the entrance.  The Philadelphia Zoo is the first true zoo in the United States. It was chartered by the Commonwealth of Pennsylvania on March 21, 1859, but its opening was delayed by the Civil War until July 1, 1874. The zoo opened with 1,000 animals and an admission price of 25 cents.  For a brief time, the zoo also housed animals brought to U.S. from safaris by the Smithsonian Institution, which had not yet built its National Zoo.  

The Philadelphia Zoo is one of the premier zoos in the world for breeding animals that are difficult to breed in captivity.  The zoo also works with many groups around the world to protect the natural habitats of the animals in their care. The zoo is 42 acres and the home of nearly 1,300 animals, many of which are rare and endangered.  Four-year-old cousin Avery pointed out all of the animals to Cam.  Jane's favorite were the monkeys running through suspended mesh tunnels.  Cameron's choice was the enormous tortoise that was over 100 years old.  Chris's top pick was the lion.  We spent over two hours seeing all of the different creatures and just beat the raindrops as we exited the zoo.  We ended our Saturday at Katie and Tyler's home in Fishtown where we devoured delicious appetizers and local pizza.

Sunday morning after our buffet hotel breakfast, we decided to take a family stroll just 20 minutes from our hotel to check out City Hall and the famous "Love" sign.

Philadelphia City Hall is the world's largest free-standing masonry building and was the world's tallest habitable building upon its completion in 1894. It was built using brick, white marble and limestone.  We didn't even realize until we were upon the entrance that you can actually walk directly through the middle of the building.  Cam was amazed by how tall it was and all of the history.

Upon exiting City Hall, we could see our next stop.

The famous Robert Indiana sculpture is in John F. Kennedy Plaza — better known as LOVE Park — just northwest of City Hall. It was installed in 1976.

We were back to our hotel by 10am and then promptly headed out in our van to Lebanon, New Jersey.  The ride was close to 90 minutes for the short journey to spend Easter with our cousins at their home, known as The Tory House.  

JJ and Jeffrey's house was built in 1760.  This is truly the oldest home we had ever been in.  Cam was transferred to his manual wheelchair so we could navigate in their home.  First up, though, was an Easter egg hunt with the little cousins.  Cameron was also included to partake in the search for plastic eggs filled with chocolate.  The property overlooks a stream and woods with a carriage house, bridge over the water and a sugar shack where maple syrup is made.  A scavenger hunt began and the kids collected their goodies.  We heard the history of the house and Jeffrey took us on a tour.  A toasty fire outside kept us all warm while we munched on appetizers.  Easter dinner was an unbelievable feast of lamb, mashed potatoes and vegetables.  It was the first time Cam had tasted lamb and he loved it!  Dessert options included our homemade Michigan apple pie and homemade cheesecake with a delectable chocolate crust.  Afterwards, JJ presented an Easter basket to all of us.  Their tradition is to give underwear to the adults, toys to the kids and chocolate eggs and jellybeans for everyone.  Cam was the proud recipient of a U of M champions shirt with "We Beat Everyone" emblazoned on the front.  With full bellies, we thanked our cousins for a most memorable Easter. Chris, Jane and their son talked about the awesome day on their drive back to their Philadelphia hotel.  More adventures were just around the corner...

Camology Quotes:

Cam is typically open to try new things. He was a bit hesitant when he heard we'd be having lamb for Easter. Upon his first bite, though, he was pleasantly surprised.

"Mom, it tastes like really good steak!"

Packing Away - Week of Mar. 18th

"If I'd known how much packing I'd have to do, I'd have run again." ~Harry S Truman

Nelson Mandela said "It always seems impossible until it's done."  While he was referencing overcoming adversity, we attributed the phrase to taxes and packing this week.

We finally decided to have some kitchen remodeling completed by a local contractor.  While it isn't extensive, there is a still a hefty list that will be tackled.  Repainting all kitchen, laundry room and  bathroom cupboards, new kitchen countertops, backsplash and sink as well as a revamped shower downstairs all need to be checked off.  Leading up to the first portion of the work, all cupboards needed to be emptied and contents packed away.  Since Cameron knew what our responsibilities were, he continued to request packing activity every evening, which his parents avoided until the weekend.

Most of western Michigan was in a winter weather advisory beginning early Friday morning.  Much to everyone's surprise, schools were cancelled on Friday.  Unfortunately for Cam, his parents had very full work schedules that day so he managed to occupy his time.  We didn't think to take any snow pictures since we were all in a bit of disbelief.
Cam continued to ask his parents when they would all complete their taxes.  That task was finally crossed off the list during the day on Saturday.  The snow was nearly gone and we left late in the afternoon to meet our cousins for dinner in Muskegon. We met at Fricano's on Muskegon Lake.  Fricano Place was built in 1885 as the Hartshorn Curtain Roll Factory. It was the only manufacturer of window roller shades in the world and operated as a factory until the early 1980s.  It was the Hartshorn Centre for years and was purchased by Ted and Jennifer Fricano in 2009.

We were all seated by the windows with a nice view of the lake and the sunshine.  Eating Fricano's pizza is an extended family tradition.  Chris refers to it as "cracker pizza" since the crust is so thin.  We all love the flavor of the sauce and the fresh ingredients.

Sunday continued the kitchen packing festivities.  We did have a nice break relaxing and watching a family movie, "Mitchells vs. the Machines" following a quirky group coming together.

The deer outdoors must have taken a cue from us all!

Camology Quotes:

Sometimes, it is difficult for Cam to make a decision between things.  Chris and Jane do try to encourage him to choose and most importantly, remain with his chosen outcome.  After debating with himself for quite some time, Cam declared: 

"I don't like this 'it's your choice' thing!"

Never Have I Ever - Week of Mar. 11th

"Look at everything as though you were seeing it for the first time or the last time. Then your time on earth will be filled with glory." ~Betty Smith 

"We shall not cease from exploration, and the end of all our exploring will be to arrive where we started and know the place for the first time." ~T. S. Eliot 

"The first time you say something, it's heard. The second time, it's recognized, and the third time it's learned." ~John C. Maxwell

Cameron experienced some firsts this week...and his parents did too.

Tuesday morning, Cam and a few of his classmates appeared on the Forest Hills Northern TV (FHNTV) program.  The local production is broadcast only for the high school student body and teachers.  This group was featured because they were all volunteering to work at the Brody's Be Cafe Coffee Cart.  The Coffee Cart was scheduled to be available for the Special Olympics basketball tournament the next day.

That afternoon, Jane picked up her son at school since they were both scheduled to be at Renew Mobility.  Cam's mom was interviewed that morning as a board member.  Cameron was confirmed for his video time Tuesday later in the day.  Renew Mobility was the honored recipient of complimentary video work by a local videographer.  Cam and Jane chatted with fellow board members Matt and Jill.  A good friend, Ongie, was also there to be filmed.  

These were just a few of the questions posed to Jane and Cam for their non-profit interview:  How does it make you feel to know that your equipment will go to someone with a disability? How has the equipment from Renew Mobility impacted your life? Can you share a specific example of something that was made possible because of this equipment?  Links to the videos will be posted in a future blog!

Wednesday morning, Cam was stationed near the gym at Forest Hills Northern High School.  The group assembled volunteered to greet, serve coffee and collect payment.  Both Chris and Jane stopped in to see their son.  Unfortunately, work schedules didn't permit them to be there at the same time, but Cam was excited they both showed up.  Our son looked very official with the cafe apron and visor.  

That evening, power soccer practice was on the agenda.  Even though it was a busy day, Cam rallied to attend.  One of his friends who he hadn't seen in a few weeks was also there.  Coach had them run drills and practice driving skills. 

A big weekend was on the horizon for Cameron.  His first overnight camping adventure was scheduled for Friday - Sunday at Indian Trails Camp.  The session was centered around St. Patrick's Day.  Cam was nervous but excited.  Jane picked him up from school so he would have a little extra time before heading out around 4pm.  Drop off was slated for 4-5pm.  Everything was incredibly organized and we met three counselors upon our arrival.  This would be the first two nights Cameron would spend away from family and friends.  After a few big hugs with his parents, we all said our goodbyes with smiles.  Chris and Jane were then on their way to the cottage.

Sunday morning pickup at Indian Trails was between 10am and 11am.  Cam's parents arrived a little bit after 10 o'clock.  According to their son, the weekend was pretty good but a couple of the kids were "screamers" as reported by Cam and the counselors.  With Cameron's aversion to loud noise, it was difficult for him to deal with.  However, he loved the activities and really liked his counselors.  After processing and reflecting, he told us later that day that he thought summer camp might be fun!  He is currently on the waiting list.

Upon returning home, our camper was truly worn out.  For the first time in a very long time, Cam dozed a bit in the afternoon while watching a movie.  A visit from our cousins was the perfect ending to the weekend.  And to make that visit even more special, Cameron was treated to the famous shamrock shake from McDonald's!

Camology Quotes:

Cam met some new friends at camp and definitely liked the staff.  Jess was his favorite counselor and had a great sense of humor.  She told us that she and Cam thought similar things were funny.  When she commented on something, Cam chimed in:

"Ms. Jess, you're being sarcastic, right?!"

Taxes Anyone? - Week of Mar. 4th

"The hardest thing in the world to understand is the income tax." ~Albert Einstein

Some people create memos, calendar events or notices, but they don't have a Cam.  Cameron is truly a walking reminder of any upcoming activity.  It is no surprise that when the month of March begins, Chris and Jane are asked about filing their taxes.  Cam's parents were able to successfully delay the arduous task for at least another week.

We finished a busy week of work and school and were all anticipating the weekend.  After a Saturday early lunch, Jane and her son ventured off to pick up Cam's grandparents.  Opa had a couple of bumps and bruises from a minor fall but was all checked out and cleared for take off to spend the night with us.  When we arrived back in GR, our cousins were waiting for us!  They had finished up a grocery shopping trip and stopped in to see everyone. We all shared tasty appetizers and played a fun card game called "Name 5" that each of us participated in.  It was an awesome afternoon.  After the cousins left, we dined on chicken pot pie paired with our collective favorite homemade applesauce.  Oma brought us some delectable Ryke's cookies for dessert.  

After dinner, we looked through an abundance of memorabilia with Cam's grandma as she sorted through pictures and mementos.  

Jane and her son asked her so many questions about her past.

We were all were surprised to find more photos never seen before as we started up the old slide projector.

We kept asking Cam to guess if he knew who was in the pics from so long ago.  He definitely improved his guessing game the more slides he viewed.

Sunday morning, we all felt a bit tired after moving the clocks forward an hour to begin Daylight Savings Time.  After a few errands and a bit more relaxing, it was time to bring Oma and Opa back to their home.

Cam wouldn't let his grandparents leave, though, before some extra tight hugs to last them for the next couple of weeks.

Camology Quotes:

We know Cam listens very carefully...so carefully, that he will commonly use words or phrases he hears his parents say. After Jane was giving Chris a hard time about forgetting something, Cam quickly jumped to his defense, smiling and saying: 

"Mom, give my Dad some grace!"

Weather Rollercoaster - Week of Feb. 26th

"It was one of those March days when the sun shines hot and the wind blows cold: when it is summer in the light, and winter in the shade.” ~Charles Dickens, Great Expectations

The end of February marking a 70+degree day is never an assumption in Michigan.  

On Tuesday, Feb. 27th, we experienced a 73℉ record!

And, the very next morning, it was snowing...our temperature dropped 50 degrees!  Fortunately, the white stuff didn't stay on the ground and the temps actually rebounded quite nicely.

Friday afternoon, Jane made plans to pick up her son from school instead of him riding the bus home.  Cam's grandma had invited them to Rosy Mound to have a fish dinner in the big dining room.  

Cameron and his mom arrived late in the afternoon and brought some mementos for his grandparents to look through.  We all arrived on time for our delicious meal.  There were quite a few full tables and we were introduced to all of Oma and Opa's friends.  The meal was topped off with a large brownie ala mode- a Cam favorite!  We were thankful for our time together and left with big smiles and full bellies.

Saturday evening, Cameron and Ms. Kaylee hung out together, shared Jimmy John's and played games while Chris and Jane enjoyed an evening with friends too.

After lunch on Sunday, we headed northward to see our cousins.  We couldn't believe how warm it was on March 3rd.  Typically, it can be 10+ degrees cooler on Lake Michigan, but it definitely didn't feel that way.  We all relaxed in the glorious sunshine for a couple of hours outside.  In fact, it felt so "balmy" that we decided to enjoy our dinner on the outdoor picnic table.  When we visit, the littlest cousins love seeing Cameron.  

In fact, they cannot wait to assist with buckling him into the van securely and making certain that all safety measures are taken.😉

Camology Quotes:

When Jane and her son were loading things back into the car, Cam was talking about how his nervous laughter reaction may not have been appropriate in a recent situation.

"Mom, you need to catch me in the act and then I'll remember."

"What did you say, Cam?"  (Cam repeats)

Cam, I literally thought you said, "Mom, you need to kick me in the a** and then I'll remember."

~insert uncontrollable laughter by Jane & Cam~

Hockey Hangout - Week of Feb. 19th

"It is not our differences that divide us.  It is our inability to recognize, accept and celebrate those differences." ~Audre Lorde

This week, we introduced Cam to an old-fashioned slide projector.  He had never seen one and it had been stored in the cottage attic for many years.  We were unsure if it would even work.  Cameron's dad has the ability to innately figure out anything.  Cam was intrigued by the setup and it was fun to see the old pictures.

We were anticipating our Saturday plans.  Jane and her son were a bit concerned when Chris caught a flu bug and ended up staying home a couple of days.  By the weekend, though, he was on the upswing.  

For the third year, our local hockey team, the Grand Rapids Griffins (a feeder team for the Detroit Red Wings) has hosted a sensory friendly hockey game.  It is named "Hockey without Barriers/Sensory Friendly Game." This game includes lower music levels, no goal horn, no flashing lights, and dimmer lighting throughout the arena.  For Christmas, this continues to be one of our favorite family gifts.

Our evening began at the Consumers Credit Union restaurant, located right inside the arena.  The food is tasty and it makes for a very easy commute to the hockey game.  Cam highly recommends the pretzel bites and chicken pesto flatbread.  

We arrived at our seating area before the first puck hit the ice.  It's always fun to see the zambonis resurface the hockey rink.  When Chris and Jane stood for the national anthem, their son went into standing mode on his powerchair.  At the end of the first period, the Texas Stars had scored the only goal.  Our family scored some delicious treats including popcorn from a local vendor and one of Cam's favorites, peanut m&ms.  The Grand Rapids Griffins scored two goals back to back and the game was now 2-1.  Our local team ended up winning the game with a final score of 4-1!  It was a fun, memorable evening for us all.

We were all ready for a day of rest on Sunday and welcomed the opportunity to hang out together and relax.

Camology Quotes:

With Chris not feeling well, we tried to keep our distance for a couple of days.  Cam's nightly routine typically includes a hug from each parent.  He relayed the following to his mom in lieu of seeing Chris.

"Mom, I'm going to give you a double hug, fist bumps and high fives. I'm pulling out all of the stops for Dad!